The Struggle to Survive

Ethan faces complicated circumstances. Five blisters blocking his airway forced us to intubate after he had tired out from struggling to breath. It is a miracle that his lungs and heart are still working after the struggle he has endured the last three days. The medical team is trying everything to secure the tube so [...]

Growing Pains

Growing Pains

Ethan is close to his three months of age and we are filled with joy to see the beautiful development of new life. He recognizes certain nurses by the sound of their voice. He enjoys music and toys like other babies. Ethan is attentive, smiles when he is happy to see mommy with his bottle [...]

Feeling helpless

Feeling helpless

I never felt so helpless in my entire life. I never witness Ethan cry of so much pain as I saw him & heard him last night and no matter how much we try to heal his wounds on his fingers and toes or any part of his body we fail every time. All his [...]

A Day of Ethan’s Care

There are a few important thing for us to take into account in Ethan's daily care, any small amount of friction on his skin will cause the poorly joint skin to split resulting in a blister, any blister that do form need to be popped immediately to prevent spreading. Any adhesives stuck to the skin [...]