Welcome to my blog! My name is Norma Cruz. God has put in my heart to share with others my story and the amazing things He was stirring within me. I’m a follower of Jesus, a wife and stay at home mom to two beautiful daughters and a handsome baby boy. I also have an angel in heaven who passed away at 4 months from a rare skin disease called Epidermolysis Bullosa. I love Photography and spending time with my family. If you have any questions feel free to email me @ firstname.lastname@example.org
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Ethan was born October 31st 2014 and was diagnosed with Herlitz Junctional Epidermolysis Bullosa (H-JEB) A severe rare genetic skin blistering condition that can also affect internal organs. EB skin is as fragile as the wings of a butterfly. Even gentle skin contact causes devastating wounds. When dressings stick, the skin often comes away too. There are many forms of EB. Ethan had the most severe one. (Herlitz Junctional) Ethan passed away February 27th 2015.
There is no cure.
You can know more about Ethan’s Life HERE