I never felt so helpless in my entire life. I never witness Ethan cry of so much pain as I saw him & heard him last night and no matter how much we try to heal his wounds on his fingers and toes or any part of his body we fail every time. All his wounds are so raw it drips blood. I know the type of EB he has it takes longer to heal or it may never even heal. The bone marrow transplant will reduce the amount of blisters. 🙌 Breaks my heart that I can’t hold Ethan when I see him screaming of pain, I can’t kiss him like a normal baby, I can’t play with him like a normal baby, I can’t even feed him like a normal baby. I never heard a baby scream so much as he did. All I want to do is cry.